Soaring with SCN2A
Join the Registry – Where Dragonflies Inspire Hope!
Welcome to The DRAGONFLY Study, a registry dedicated to individuals and families impacted by SCN2A-related disorders. This registry serves as a central hub for sharing patient experiences and contributing vital information to drive research forward. Join us in building a stronger, more informed community and making a lasting impact on the understanding and treatment of SCN2A-related disorders.
For more information about how to register, click here.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.